Person checking blood sugar level with glucometer.

Breaking down racial disparities in diabetes prevalence

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May 9, 2023
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This story originally appeared on Northwell Health and was produced and distributed in partnership with 麻豆原创 Studio.

Breaking down racial disparities in diabetes prevalence

Diabetes is a disease about which there are countless myths, misconceptions, and even moral judgments. Widespread cultural beliefs about who develops diabetes鈥攁s well as how and why鈥攃ontribute to while obscuring its real, and very troubling, social determinants.

To many, diabetes鈥攑articularly Type 2鈥攊s associated with bad decision-making: It is seen as a consequence of unhealthy dietary and lifestyle choices, and therefore somehow different from other chronic illnesses like cancer or Crohn's. Others may consider diabetes a product of body fat or even a disease specific to the biology of certain racial or ethnic groups.

Diabetes stigma is pervasive. published in 2020 in association with the University of Connecticut's Rudd Center for Food Policy & Health found this to be the case not only socially but within medical settings as well. In one study, 53% of surveyed adults with Type 2 diabetes believed they could have , and nearly 1 in 2 experienced judgment for their dietary choices and felt the need to hide their condition from others.

A second study showed that 44% of diabetic adults felt for their weight and condition. In an of people with either Type 1 or Type 2 diabetes, 81% of those who reported stigmatization indicated they felt perceived as having a character flaw, or that having diabetes was a "failure of personal responsibility."

Yet medical researchers have debunked factors like , , or as the driving forces behind diabetes. Instead, the disease is one of many health conditions that expose . The impacts of social inequities, including conditions created by systemic racism and poverty鈥攍ike access to quality, affordable health care, nutritious foods, and a clean environment鈥攁s well as other factors like family history, have been shown to .

These inequities continue to also impact the treatment of those who have already been diagnosed with diabetes. The price of insulin in the U.S. has over the past two decades, far surpassing inflation rates. Reports have accused pharmaceutical companies of of the fact that insulin is a lifesaving drug for millions of people, knowing that it will likely be bought at any price.

The increasingly high cost of insulin disproportionately impacts low-income and uninsured populations, putting them at higher risk of dangerous complications and death. The Inflation Reduction Act capped copays on insulin for Medicare subscribers at $35, but for Medicaid, employer-provided, or individually purchased insurance coverage.

Using data from the and, looked at racial disparities in the prevalence of and morbidity from diabetes in the U.S. Both Type 1 and Type 2 diabetes were included in the data, but since Type 2 is , most of the trends represented in the analysis reflect the rates of Type 2 diabetes.

Line chart showing rate of diabetes in the U.S. between 2000 and 2021. It has risen across the board, and Black and Hispanic people have the highest rates.
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Northwell Health

Diabetes rates in the US

The U.S. has , but the disease does not fall across the population evenly. According to the CDC, Black and Hispanic populations experience much higher rates of diabetes than white populations; Asian populations have diabetes rates just above the U.S. average.

Native Americans also experience , according to data from the Indian Health Service. As much as 14.5% of American Indian and Alaska Native populations suffered from diabetes in the 2018-19 year鈥攖he highest rates of diabetes of any racial or ethnic group.

Studies of racial disparities in diabetes rates have shown that a range of economic, social, and geographical factors linked to systemic racism . According to the American Journal of Public Health, poverty, high exposure to toxins, limited access to affordable nutritious foods, and inaccessible health care services are just a few of the risk factors that have been shown to elevate the risk of diabetes鈥攔isk factors that Black and other non-white Americans experience at disproportionate rates.

Despite the higher rates of the disease among non-white populations, these populations are not always accounted for in clinical trials for treatment. A 2017 analysis of diabetes treatment testing revealed that, out of 19 individually tested drugs, in Black, Latino, and Asian populations (the others were selectively tested among those populations, but not in each of them), even though these groups make up a large percentage of those who suffer from diabetes in the U.S. Native Americans' participation in clinical trials for diabetes treatment was not included in the analysis.

County map showing Southern U.S., especially South Carolina, Mississippi, and Alabama have the highest prevalence of diabetes.
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Northwell Health

Regional disparities

Diabetes rates are particularly high in the Southeast and Appalachian regions of the U.S., a cluster that the CDC dubbed in 2015. Determined using county-level data, regions were included in the diabetes belt if at least 11% of residents were diagnosed with the disease. Overlapping heavily with the so-called "stroke belt," the disparity in diabetes rates in this region mirrors specific population concentrations鈥攁 live in the Carolinas, Georgia, Alabama, Mississippi, and Louisiana, according to Census data.

Perhaps unsurprisingly, many of the factors associated with greater diabetes prevalence are particularly concentrated in this region. Many of the counties with high diabetes rates are rural, where due to far distances between residents and providers, limited public transportation, and lack of affordability. In addition, many states in the region have , which would cover more low-income individuals and offer an enhanced federal matching rate, making affordable health care even less accessible.

Bar chart showing diabetes prevalence by territory compared to U.S. average of 10.7% in 2021. American Pacific territories show highest prevalence of diabetes. The Northern Mariana Islands had the highest rate of 23.4%.
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Northwell Health

Disparities among Pacific Islanders

Over the past several decades, Pacific island nations have experienced some of the highest rates of diabetes in the world, and much higher rates than the continental U.S. But it has not always been this way: Studies have shown that colonization of the islands had a , as well as economic and social well-being.

Before Japanese, Spanish, American, and German forces occupied the Pacific islands, Indigenous Pacific Islanders mostly ate native staple foods like taro, breadfruit, yam, and cassava. The arrival of colonizing powers meant the replacement of many of these foods with heavily processed foods and different types of starches, which caused a fundamental shift in general nutrition.

Adding to the influx of less nutritional foods into Pacific island nations was the intentional sale of nonnutritious (but affordable) food waste, like , by the U.S. to the islands, enabling American industries to profit while causing enough health issues that American Samoa banned turkey tail imports in 2007. These profound changes to diet are thought to have helped in a population that previously had very low rates of the disease.

Column chart showing death rates from diabetes in the U.S. Native Americans and Black people are most above the national average.
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Northwell Health

Disparities in mortality

In 2021, diabetes was the in the U.S. Indigenous Americans, Alaska Natives, and Black Americans have disproportionately high diabetes death rates compared to the national average. Diabetes is not usually a deadly illness, so long as it is carefully. It can, however, develop into a fatal disease if it goes untreated, and can also result in complications like heart disease and a higher risk of stroke.

Studies have shown that diabetes mortality is influenced by the that put Black and Indigenous Americans at higher risk for diabetes in the first place: segregation, poverty conditions created by systemic racism, and lack of access to affordable health care. For those without equitable access to affordable treatments and monitoring by doctors for potential complications, diabetes is more likely to become deadly.

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