Autism spectrum disorder prevalence in children is climbing鈥攈ere's what to know

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December 8, 2021
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Autism spectrum disorder prevalence in children is climbing鈥攈ere's what to know

Determining the cause requires investigating multiple factors鈥攆rom cold, hard statistics to social, biological, and environmental influences.

Autism spectrum disorder (ASD) is a common disorder, affecting per the Centers for Disease Control and Prevention. Common or not, the road to recognition has been grueling. The term autism was first used by psychiatrist  to describe schizophrenic patients who were considered . Today, it is an umbrella term for neurodevelopmental disorders that encompass a broad and .

This is a true testament to the dramatic evolution of ASD over the last century.

Lost in this ambiguous historical translation is the human element, that each person with autism 鈥攄ifferent social challenges, different physical manifestations, even different strengths. It's part of the undeniable nature of ASD, as well as what makes the disorder particularly difficult to diagnose.

With the diagnosis spike over the last decade鈥攋umping from 鈥攖here is a question on everyone's mind; is the spike due to an actual increase, or more awareness and testing, or is it attributed to inaccurate diagnoses?

麻豆原创 has created a list of 10 possible explanations for the recent spike in ASD diagnoses based on scientific and governmental reports, including research from  and the .

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Increased awareness is a big contributor

Increased awareness of autism has led to more reported diagnoses in medical records and school files. The CDC uses these sources for data collection, causing an . With that said, , a single factor can鈥檛 be attributed to the years of increase. This is seen in how the 鈥攅xclusively 8-year-old children, only every two years, and from a selection of 11 states.

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Policy for autism diagnosis begins requiring screening for all children, revealing more cases

The American Academy of Pediatrics introduced a  recommending pediatricians screen for autism beginning at 18 months and again at 24 months. This earlier screening, happening more frequently, adds to ASD prevalence. The  is only a recommendation with the final call relegated to states and pediatricians. The AAP also doesn鈥檛 require a specific tool for ASD screening. These two factors reveal vulnerabilities in the accuracy of ASD diagnosis data.

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Correcting misdiagnosis and allowing multiple diagnoses increase cases

Policy changes in regards to correcting and allowing for multiple diagnoses has increased ASD prevalence. Historically, ASD has been grossly misdiagnosed, generally as an intellectual disability (ID) or attention deficit hyperactivity disorder (ADHD). Compounding the misdiagnosis factor, medical professionals were restricted to single diagnoses, most opting for an alternative to ASD given the lack of support and services. Both of these policies changed in 2013 with the updated version of the , after which ASD prevalence continued to spike.

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Changing autism spectrum disorder criteria broadens the range of diagnoses possibilities

Broadening the criteria for ASD has resulted in an increase in diagnoses. In the 1940s, based on characteristics seen in severe cases, yet the 2013 publication of the provided a condensed, single-fit ASD diagnosis. This new criteria included partnering conditions such as high functioning autism, Asperger鈥檚 syndrome, and. More children fit under the ASD umbrella.

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Difference in state-by-state diagnosing of ASD increases prevalence

While ASD diagnosis practices are recommended federally, direct policy implementation is largely state-decided.  demonstrates the fluidity of ASD data. Per Scientific American, Colorado reports a 1 in 93 prevalence of autism, while New Jersey reports a 1 in 41. With that said, this statistical difference isn't necessarily due to actual prevalence rates, but is most likely due to how the states diagnose ASD and support awareness campaigns. If the CDC samples data from states that provide more ASD services, then the numbers will be higher and vice versa.

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Biological, social, and environmental factors may increase prevalence

While the cause is unknown,  that genetic, biological, and environmental factors increase risk of ASD. For example, paternal age, maternal physical and mental health during pregnancy, and exposure to air pollution and pesticides are a few of these factors. As norms change鈥攎ore couples having children later in life, , and 鈥攕o could the numbers of ASD diagnoses. The studies are limited regarding the relation of these factors and the most recent prevalence spike, so, at best, these external outliers are looked upon as theoretical.

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A change in school-based special education reporting policy causes a cascade of prevalence

Two 1990s policy changes played a significant role in the reporting of ASD. In 1990, the鈥攊n conjunction with the U.S. Department of Education鈥檚 Office of Special Education鈥攔ecorded an uptick of school-based ASD service requests. At the same time, the 1990 Individuals with Disabilities Education Act (IDEA) began requiring a tally of children enrolled in special education services, autism being included in 1991 a year later. CA DDS pulls data not just for autistic individuals, but also for epilepsy, cerebral palsy, intellectual disability, and intellectual disability-related conditions, which could inflate the data.

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Clinicians lean into ASD diagnoses for access to specialized services

As awareness of ASD grows, so do specialized services. is affected by this growing scaffolding of ASD-specific support, accessed via a professional鈥檚 reported diagnosis. It鈥檚 been found that clinicians are more likely to give an ASD diagnosis in order to access specialized services for families in need. Previously undiagnosed borderline cases now tip into an ASD diagnosis, therefore boosting prevalence. It can be argued that, as of 2013, these borderline cases were already included in the broader ASD definition laid out in the DSM and therefore would have been diagnosed anyway.

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Widespread screening reaches children of color, increasing diagnoses

Mostly due to lack of services, to have lower ASD diagnoses. For instance, a found that Black children were diagnosed six months later than white children, even when parents voiced concerns for years, highlighting the racial disparities of ASD services in communities of color. On the other hand, with changes in the DSM and AAP policy, widespread screening has seen a boost in ASD diagnoses for both Black and Hispanic groups. In fact, the cases of autism in Hispanic children.

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CDC collection relies on medical and school reporting, providing an efficient data intake with massive potential vulnerabilities

The 鈥攎edical and school records for 8-year-old children, every two years, from 11 states. This sampling reveals undiagnosed and diagnosed children, which could contribute to increased prevalence. With that said, this selective sampling allows for. Assessing an individual in person is far more than using third-party records. Plus, children who 鈥攖hose that are home-schooled children or those living in isolated and rural areas, for instance鈥攚on鈥檛 be counted. Both of these factors may skew the data.

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